"I do not eat or drink or walk or talk the way you do. I don’t breathe without a machine helping me day and night. I cannot move my arms or legs. And yet. I’m still man. I’ve lost so much. And yet. I’m still here. I feel everything. The slightest feather touch anywhere on my body. And my heart is alive. To meaning. To value. To love. Which is all it’s ever been about"
One of my biggest 2018 reading goals was to read more of different genres, and I am happy to say that I've been doing great with it (at least I think so). This time I ventured out to read some non-fiction, particularly a memoir, which I honestly never read. But I am so happy that I did.
I am a hypochondriac, so even reading this book made my scalp tingly with worry and self destructive thoughts. But I am pushing my comfort zone this year, and It's not yet dark was totally worth it.
"It’s only important that you remember that behind every disease is a person. Remember that and you have everything you need to travel through my country."
It's not yet dark reads like a fiction. Maybe it's the first person narrative. Maybe it's the short, to the gut sentences. Maybe it's just the flow of it, but it does not feel at all as I thought I a memoir would feel. Which I think is absolutely perfect for people who don't read much non-fiction (like me).
ASL is a terrible disease, and it's so terrible because nobody understands why it happens. Nobody can tell that it might happen till it actually happens, and once it does - there is no cure for it. Person loses their mobility, bit by bit until they are completely motionless and powerless in their body. We ll know the saying "your body is your temple", but what do you do when "your body becomes your cage"?
What pulled me into this book was how honest Simon was - he was terrified and he wasn't hiding it. He wanted to live, he was angry, he was desperate and he was real. Death is scary and death was looming over him for many years, taking little bits of him each passing day.
Despite of it all Simon never gave up - he managed to keep dreaming and creating, all made possible with love and devotion of his family. Even when doctors came into his room saying "why would you choose to keep living like THIS?". Even when Simon couldn't move anything except his eyes - he was still there, he was a man who loved and was loved in return.
If you are looking into venturing out into non-fiction I'd definitely recommend It's not yet dark. It's a quick ,but very memorable and important read.